In the flurry of wrapping up work projects and seeing people before my hospital stay, I’ve neglected this blog, so instead of my ramblings and random musings, here’s a brief update.

I checked into the hospital on Sunday. I finished one week of outpatient radiation and now I’m receiving my second week of radiation as an inpatient. I wrap up the Total Lymphoid Irradiation (TLI) on Friday. On Saturday, I begin four to five days of intense chemotherapy (cyclophosphamide and etoposide), followed by a stem cell transplant. Then I feel terrible for seven to 10 days before I start to feel better.

Once my counts come back up, they’ll release me. Overall, I’ll probably be here for about four weeks or so.

I wasn’t sure whether I’d be up for visitors, but this week I feel OK. I’m not sure if I’ll feel sleepy this weekend from the chemo, so I can have visitors through tomorrow, but I’m also in radiation from about 10 am­–noon and 6–8 pm. But please don’t feel obligated to stop by. After Wednesday, when I’m feeling awful, I probably won’t want to see anyone—or remember seeing anyone. When I’m on the upswing, I’ll let you know!

Once I get out, in early to mid May, I’ll have to stay home at rest for about a month and then I can slowly get back to normal in the next three months or so. But it’s slow-going, and I have to take precautions because of my compromised immune system for quite awhile. (It’s tough for someone who lives by the 5-second rule, which has recently been proven to be true.)

Thanks again for all your posts, notes, emails, cards and kind words! I’ll try to update this blog as long as I am coherent.

Today I wondered what it will be like when I don’t feel as if I’m up against absolute deadlines. These deadlines are, for the most part, self-imposed.

As I had one of my last dinners out—for the next four months, at least—with a friend last week, I realized I have had a “last night out” series of events, beginning a year ago, before the ABVD chemotherapy.

Since then I’ve had a string of last hurrahs—before Brentuximab in November, and then before my ICE treatments, when I worried that I wasn’t having as much fun as possible. Friends have gamely attended this series of lasts, right through last week’s meals out, even though I’m like that friend who keeps having going-away parties but never seems to move.

I feel as if I’ve been scrambling to wrap up freelance work projects for a long time—before the first round of ICE, the second round of ICE, before radiation and this hospital stay for the stem cell transplant. Though I have nothing pressing to do, I’m still trying to finish up a few things before the mind fog of chemo descends upon me this weekend.

And then I realized I also wouldn’t be able to update my blog, which I’ve been ignoring—so here I am. How could I feel busy when I’m technically supposed to be doing nothing?

Another deadline arrived this morning. Today is my first and last day to walk the halls. I was told on Monday that I had to stay in my room because of my neutrophil count, but today, the nurse and nurse practitioner agreed that I could take some laps around the floor.

By next Wednesday, I should be feeling temporarily terrible if everything’s on schedule. Though I’m not looking forward to it, it’s a relief. If I’m lucky, this will be one of the last hurdles to jump.

I finished one week of outpatient radiation and now I’m in the middle of my second week, which is Total Lymphoid Irradiation (TLI). On Saturday, I begin four to five days of chemotherapy, followed by a stem cell transplant. Then I feel terrible for seven to 10 days before I start to feel better.

Right now I’m waiting for my side effects to start. Truthfully, I’m hoping my nausea holds off at least through today, so I can enjoy the breakfast pizza and Mexican bean soup specials and dig in to some Easter candy a friend brought by yesterday.

So I see this weekend and next week as another deadline. I think I’m a little less tightly wound than I was before ICE.

These deadlines don’t loom so much as lurk, since I’m not sure exactly when I’ll start feeling nauseated or fatigued.

I realize all these “lasts,” are extremely temporary in the grand scheme of things. There are also post-transplant firsts on the horizon—and the accompanying celebrations—first walks around the neighborhood, first outings with friends, first dinners out, first workouts. There are more joyful firsts, I hope, just around the corner.

The good news is that I finally have my hospital admission date: April 13.

I suppose unknown news isn’t really news. The outcome is the same, and things are proceeding as planned. But after the MRI, the doctors still aren’t quite sure what’s lighting up on the PET scan. They think there’s a 75 percent chance it could be Hodgkin’s lymphoma, which is strange, because it’s not in my lymph nodes, but it my pancreas. The other 25 percent is a big question mark. Inflammation? It doesn’t appear to be pancreatic cancer or another pancreas issue, according to the MRI.

There was talk of doing an endoscopic ultrasound and biopsy this morning—in fact, I had one scheduled for next week. But after some thought, it was cancelled. The biopsy would sample only a very small part of the pancreas—possibly not enough to tell if Hodgkin’s lymphoma was present. It also might not rule out other possibilities enough that they could tell what exactly it is. And doing a more invasive surgery at this point doesn’t make sense.

The radiation doctor was going to radiate this area anyway, so everything is going to go as planned. Five days of outpatient radiation begins on April 7, and then the hospital stay and everything it entails begins the following week.

I’m disappointed that there’s still an unknown bit of possible cancerous something lurking as I go into transplant, but I’m also relieved that this doesn’t push back treatment too much. I want to get this over with. I am as impatient as this cancer is stubborn.

Photo note: I have no photo of my pancreas on hand, so here is a photo of my cats taking an IQ test.

As I was taught in journalism school, I’m going to put the most important information at the top. I have a blood clot in my lung, so I’m going to take blood thinners. Also, my PET scan showed almost no cancerous activity. I have had two remaining stubborn spots that ignored the ABVD chemo and shrunk slightly with the Brentuximab. Two rounds of augmented ICE finally got rid of the spot in my chest. A tiny bit remains in the belly area, but the good news is that they’re going to proceed as planned, with the radiation and the stem cell transplant.

I’ve been pretty sedentary lately. But over the past week or so, I’ve felt winded—really winded walking up the short flights of stairs to our third-story apartment. I also was really out of breath after running for the bus the other evening, but it was worth it. It was really rainy and windy, and I’d taken a gamble that the bus might be waiting at the stop by the train station. It was, and I had to walk only a block home. I consider taking this risk a great success now that I don’t get out much.

Yesterday, I went to the near-top of the Empire State Building. Friends were in town and they offered to be my tourist beards to this attraction, which I’ve never visited. I now have seen everything in New York City there is to see. (Literally—you can see everything from the near-top, which is considerably cheaper than the absolute top.) You have the option of walking up six flights of stairs or taking an elevator to the observation deck. We looked at one another for awhile, all hoping someone would suggest the elevator. Finally, I cited my health and recent shortness of breath to avoid the stairs. Also, walking up six flights of steps is harder than it sounds. I did it once when an elevator was broken and deeply regretted my decision between floors four and five.

But now I can cite my pulmonary embolism as a reason for my shortness of breath. Although the doctor pointed out my hemoglobin is low, and that can also make you more tired easily. (That explains why I needed to go to bed after cleaning the apartment yesterday.) I suppose I should have noticed something amiss, but it’s hard to tell what isn’t normal anymore.

I also forgot to ask if there was anything I could do to avoid clots—other than to not have Hodgkin’s lymphoma or chemo. I seem particularly clotty, although I don’t think my arm, which is feeling a little better, showed any clots. It’s just irritated veins, I guess.

On Thursday, I’m going to have some ultrasounds of my legs done to see if they should consider filter that would filter out any more blood clots. (It’s one of those things that sounds made-up. Really? They can do that?) And I’m on Lovenox for another six months. I have those weird, hard bumps under my skin from the Neupogen injections, so I feel as if I’m running out of places to give myself shots.

As for the PET scan, it’s good-ish news. I’d rather have this stubborn cancer spot be gone already, but I’m also glad that it’s not going to hold up the next steps for radiation and stem cell transplant. The doctor showed me the pictures, and everything looks much better.

I’m meeting with the doctor about the next steps for radiation and transplant on Thursday, so I’m still on track! I won’t be in the hospital this weekend, but hopefully by the following weekend, I can start my stay. Not that I’m looking forward to it, but I’m looking forward to being on the other side of that stay.

I just spent a few hours cleaning. Mostly this was filing papers and dusting. With my bum phlebitis-inflamed arm and my chest catheter, I can’t do things like dust under the bed, or move things around so I can vacuum and mop.

I’ve had several last-cleaning-before-the-hospital-stay situations—before both rounds of augmented ICE, for instance. But this feels particularly final, since I’ll be away for my stem cell transplant and radiation for a month and I won’t be allowed to clean for three months. Specifically, I won’t be allowed to vacuum or clean the bathroom.

There’s a chance my hospital stay will be delayed a week or two. (The worst case scenario would be longer, if the PET scan still shows cancerous activity.) So I may be able to clean next weekend. Yippee.

People have asked why I don’t hire a cleaning person. I’ve suggested getting a cleaning person during my convalescence, but my boyfriend shot down that idea. Truthfully, I’m relieved.

I’m not comfortable hiring someone to clean for me. That’s not to say I’m against having things done for me. My boyfriend does most of the cooking, because I don’t have time. And he would do the driving when we had a car. I liked pretending that I was a fancy NYC person with a driver.

I love having my laundry done. I might live here forever specifically for that reason. When I heard that you could just take your laundry to the laundromat and it would be returned to you neatly folded and clean, I nearly wept for joy. It’s like being in college and going home for the weekend and having your mom do your laundry, without the guilt.

The thought of doing my own laundry again leaves me deeply depressed. It’s not just the laundromat, which is an inconvenience. When I had my own washer and dryer in Ohio, I still wasn’t big on doing laundry. Or doing laundry correctly, I’m told. I just put all my clothes in together, without sorting. My laundry all has something in common—it’s dirty. So in it goes, and out it comes, clean, if maybe grayer or smaller.

I was taught to read labels when buying things to avoid buying dry-clean-only items and things with complicated instructions. Sometimes I forget. With dry-clean-only items, I often leave them in a pile and then wear them again a few times, my own version of dry-cleaning, before actually taking them in to be cleaned professionally.

If I have my way, I will never do my own laundry again. But I’d probably hire an assassin before I hired a cleaning person.

Growing up, somewhere along the way, it was instilled in me that having a cleaning person is for lazy people. Frivolous people. People who can’t clean up after themselves.

I know this isn’t true. Friends who are highly respectable, responsible people have cleaning people or cleaning services. So I don’t judge others, but I would judge myself harshly on this point.

I’m not sure where I got this idea. I don’t think it was ever overtly stated. But it was implied.

My grandmother did all her own cleaning. I’m not sure how she would feel about my laundry situation, but I know she hated ironing, so I feel as if she’d approve of my current choices. (Ironing depressed her. I think it made her dwell on disappointments. I feel the same way about cleaning the bathtub. I can’t clean the tub without feeling angry and depressed, so I get it. We all have a household chore that gives us too much time to think and inevitably and inexplicably stirs up all of life’s disappointments.)

I think when the subject of someone with a cleaning person was brought up, there wasn’t quite an eye-roll. But it was said with a hint of disapproval and a slight pursing of the lips.

So, with my last bit of strength, I will be dusting or mopping, reluctantly and with an air of martyrdom and grim determination. Though now that I physically can’t do some chores, I will channel my energy into bugging my boyfriend. He might change his mind about hiring a cleaning person after all.

 

Some of you have asked about visiting, and as Greta Garbo was famously misquoted as saying, “I want to be alone.” I think.

That’s not to say I don’t want to communicate via Internet and phone. I had a few visitors during my most cognizant stay, when I felt the most well, and that was nice. But this isn’t going to be any fun. I wouldn’t be there if I didn’t have to.

The worst way to put this is that I’m going to get burned from the inside out the first five days, followed by seven days of being continuously poisoned intravenously. Then I’m going to be sick and sleeping — and, according to what I’ve heard, in a zombie-like state. Someone who’s been through a stem cell transplant said people came to see her, and she didn’t remember. The last week, I’ll be recovering, but I still expect to be in a haze.

I hate to be one of those people who inspires a Dear Abby letter. If you really want to come visit, you can. I think it’s nice that people want to, and I don’t want to hurt anyone’s feelings. But honestly, I’d rather see people when I don’t feel the worst I’ve ever felt. Everyone’s been so supportive and nice, so I do feel bad. But again, that same person who had been through this said that there came a point when she had to ask people to leave and she had to learn how not to feel bad about it.

If you happen to be around and want to drop by, that’s OK. But if you plan to come to New York specifically to see me in the hospital, please don’t. Unless you’ve always dreamed of coming to New York without the obligation of seeing me very much.

I just honestly believe I really won’t be up for visitors. Like I said, that could change. I won’t have a roommate this time, so I won’t feel pressured to win a popularity contest. (Because you know I’d feel a little rivalry.)

If you’re worried I’ll be bored, I don’t think I will be. I grew up as an only child on a cul-de-sac with no other kids. I’m used to entertaining myself. And I really do think I’ll be sleeping a lot, if augmented ICE was any indication of how I’ll feel.

It’s possible I might change my mind, at least for that chemo week, before I enter the zombie part or “hell week” as it’s sometimes called. (I’ve thrown up on most of the people I’ve gone to college with, so this might be your big chance to join that exclusive club.) You can check with my boyfriend for the latest!

Here are the rules for visitors.

Visitors have to have received flu shots for this season. My boyfriend is going to get his first flu shot ever. I can’t say anything to its efficacy. I’ve had flu shots and I’ve not had flu shots, and I’ve never gotten the flu. (Well, not ever. I had it once in second grade and I had the worst flu ever—nicknamed the Thanksgiving Disease by my group of friends who survived that terrible 1996 plague—in college.) That said, I’m really bummed that this whole procedure is going to obliterate my immune system. My old immune system was pretty great, and I rarely got sick. Except for the cancer. So I guess it’s back to square one.

Visitors must wear face masks, gloves and sometimes gowns. I hope most people wear formal gowns and tuxes when they come to see me anyway, but the hospital will provide gowns. (I don’t think they’re hospital gowns and I don’t think you have to get naked under them, but if you do, that’s your choice.) If you wear a face mask, I’d like you to pretend you’re in the band Clinic.

Visitors can’t have any germs. Well, they can’t be sick at least. No cooties!

No kids younger than 7. As much as I complain about missing my cats as a cat lady, this must be a very sad rule for parents of young children undergoing stem cell transplants.

No live animals or plants. The last time I was in the hospital, a bed bug-sniffing beagle came around as a precaution. I had a scheme to dress the cats as beagles, but I decided not to compromise their dignity by disguising them as dogs.

After the transplant, I want to see everyone, but that’s not going to happen right away, sadly. I’ll be back to square one with my immune system, so I have to stay away from crowded places for three months. I realize New York City is a pretty crowded place. But it’s advised to stay away from places like grocery stores at peak times, something I try to do anyway because I work at home and don’t need to rub elbows with the hoi-polloi. (I assume this also means the train, which is supposedly “filthy” and officially plagued by “schmutz.”) I have to avoid people with colds and viruses and such, especially for the first three months.

Post-transplant, I’ll also probably have trouble concentrating or remembering things. (I know some of your will say I had trouble with that before — insert comedy rimshot here.) It’s something referred to as “chemo brain,” a lingering mental fog.

So far, I’ve noticed this only a few times, after emerging from ICE. In one case, someone sent me an email about one thing and I kept responding to the subject we’d discussed in another email. It’s been hard concentrating during chemo, when the fatigue sets in, and afterwards, when I awake from my days of sleep. After that, it’s a bit like Lazarus rising from the dead or Sleeping Beauty awakening from her spell—or at least how I imagine it would be—it takes a little bit of time for me to remember everything that was going on before I went into chemo-induced hibernation. If I feel as if I’ve been asleep for a thousand years after a few days, I think a week or two will be harder to recover from.

In any case, please bear with my forgetfulness and general confusion—as you always have. I will remember an anecdote in detail from 1999, but I can’t remember my keys. And I get some very different things mixed up as it is. I sometimes get Gary Numan and Randy Newman mixed up. Oh, and Billy Bragg and Billy Squier. I also get Tinder and Grindr confused, so it’s a good thing I don’t online date. Mostly it is confusing to me. If you’ve talked about one of these subjects and I’ve looked puzzled, I’m just working this stuff out.

So in short, it sounds like, for at least three months, I’ll be easily tired and worn out, but I can slowly start to get back into the swing of things. And visit—or don’t. I’m just going to be exhausted, and I might smell like garlic.

Hopefully I’ll be almost back to my old self by my birthday in October!

I now have more than 6 million stem cells ready for my transplant. It turns out my guess was pretty accurate on Monday—I had 3 million and change—and I had to go back Tuesday to have more stem cells collected.

So I had some grilled cheese and set off for Manhattan, but not without completely forgetting the Neupogen injections. I came home, took my shots and then rushed to the stem cell collection room. It was a full house, with all the beds taken, so I had to wait to get hooked up. Then my platelets were low, so I couldn’t get a heparin injection, which apparently moves things along. So this collection took a little more than five hours, and I was given heparin at the end.

I also got some yogurt to keep my calcium levels up, and the nurses shared some of their candy with me. It’s a pretty happy place, considering your blood is being drawn out, spun around and put back in for hours. The only painful part is waiting, and the nurses do their best to make that painless.

I plugged my laptop in and did some work, but I felt as if I was moving at a snail’s pace. A nurse explained that the Neopogen boosts white blood cell production, and the bone marrow is so focused on that that it lets other stuff slide — like platelets for clotting and red blood cells.

That explains why I’d been so sleepy. On Monday, I came home took a nap, and then went to bed early and slept for 10 hours. I woke up Tuesday refreshed but by hour three, I couldn’t work anymore and decided to read, and then I slept for at least an hour.

A social worker from the hospital also came by to see if I had any questions and to make sure I would have adequate care after the transplant. I was a little sleepy, so I feel as if I didn’t have any good questions. Also, my appointment list just had a name on Monday, and I didn’t check to see who I’d be seeing. So I’d gone to my dental appointment ready to discuss my feelings. (I know my regular dentist, so I guess I can discuss my concerns with her if I would like both a check-up and to talk about my well-being.) Most of my questions were answered by the online session last week with a transplant doctor and a volunteer who talked about going through an autologous stem cell transplant for Hodgkin’s lymphoma.

TMI alert: Whenever I blow my nose, my right nostril often produces blood. It’s happened after both ICE treatments and the doctors said since my platelets are low, I’m prone to bleeding. To add injury to this insult, while I was wiping up the dried blood from under my nose, it must have cut my skin, so I now have a very visible cut under my right nostril. It now beats my most stupid injury surpassing the time I chipped my tooth while drinking a fancy Bloody Mary. (Felled by an olive pit.)

I still have a giant, swollen monster arm. I’m worried that once my platelet counts go up, it might just burst open. I assume that’s never happened. In the meantime, I will continue to smell like menthol patches and not bend my arm.

phlebitis

Yesterday, I went out into the world—to dinner and to a tiki bar, where I could not, alas, have any delicious tiki drinks. But it was nice to be out in civilization for a bit. I laughed so much, my cheeks ached.

Today, my bones ache instead. I am angry and cranky. I have two raised, red bumps that look like blood clots.

Oh, I’m sorry: phlebitis. I have been corrected.

I called the doctor on call about the bumps to see if they wanted to schedule an ultrasound to confirm. He doesn’t think they’re clots and told me that he’d pass along the information to my regular doctor tomorrow.

I had to go in today to have my blood checked. The doctors don’t want my platelets to drop below 20, but today they were down from Friday’s 35 to 8, so I got a yellow bag full of platelets.

I wasn’t going to bring up my superficial clots to the nurse, but my boyfriend said I should. I asked her if the platelets would affect my clots. I wish I hadn’t. She asked me why I thought they were clots, and I said because they were exactly like the clots I had in my other arm. She asked me if I’d had an ultrasound. No. She shook her head at me. I showed my new painful, red, raised bumps to her, and my old clotted arm that still feels like I have straws embedded in my arm but is no longer swollen.

“That was phlebitis?” she asked.

Yes. I guess. All I know is that it made me miserable for weeks. I couldn’t move my arm. Sometimes, it felt like a tiny fire was inside. It hurt. A lot. Almost the time.

“It’s not the same thing as a clot,” she said.

That’s fine. Phebitis. I was being nice, despite my pain, and she went out of her way to try to make me feel stupid. I’m not sure what she perceived about my attitude. I has asked a simple question.

Still, my usual response would be to tell someone to phlebite me, but I don’t like to mess with people who have access to my bloodstream, even if they’re being condescending. That didn’t improve my mood. I feel like no one’s taking me seriously and that I’m being dismissed.

I’m not saying I know everything…or anything, for that matter. I’m saying that whatever happened to in my right arm that caused it to hurt and swell for weeks is happening in my other arm on my belly and I would prefer that it not.

I’d hoped my new platelets would make me happier, but I’m still a big jerk today. My boyfriend is out exchanging some Henley shirts for me, so I can wear them tomorrow for my stem cell collection. (Another alarming thing: one of my catheter lumens isn’t working. The nurse just said they “would do what they had to do” tomorrow and didn’t say any more.)

I am trying to get nicer in the meantime. I am wearing some pain patches. I’ve rubbed the cat’s soft belly. I might nap.

I am not taking my oxycodone. I would sell it for extra cash if I had no scruples, but I’ve recently seen a lot of news pieces on the heroin epidemic, so I’m not going to turn into a small-time Walter White. I’m also terrified to take it now, on top of my usual wariness of pain meds.

My big comfort today is the cheesefest that’s going to occur, since I have to eat a lot of dairy before my stem cell collection. For lunch, I had saag paneer, with cheese and spinach, both high calcium. For dinner, we’re having an assortment of cheeses. Cheese, at least, makes me happy.

Today’s just one of those bad days, when I want this to be over. Naptime, then hopefully I awake a new woman.

My bones hurt. Finally.

We’ve been doing two Neuopogen injections daily since Sunday. I brought my old syringes to the doctor yesterday, so they could safely be discarded,  and then I almost left them in the cab. (I’m usually not a fancy person who takes cars to the doctor, but my appointment would have put me on the train at rush hour with germy people who would all be out to knock my catheter out of my chest.) So that’s one way containers of syringes get left in cabs, I suppose.

I was told that my bones might hurt as they produce more stem cells, so I hope this is a good sign. I have pain medication, but the pain isn’t that bad, and I hate taking stuff.

I’m really looking forward to eating a lot of dairy. I see a lot of cheese in my future.

My doctor visit yesterday was pretty uneventful. I got the dressing changed on my catheter and had some bloodwork done. My red blood cell count is pretty good, because of the transfusion I had before I left the hospital. My white blood cells are low, as expected.

My platelets are also low, at 35, so I have to go in tomorrow for another blood check to make sure they don’t drop below 20. I’m at risk for bruising and bleeding more easily. So, no brawling. The catheter had ruled that out anyway. Sigh…

Until then, I’m allowed to go out and be in the world a little. I’m going to go to dinner tonight and go out on Monday with some friends for a big, cheesy dinner. If all goes well, I’ll be in the hospital soon, so I’m lobbying for a pizza party at home so I can see people before the hospital stay and my hermitage begins.

The topic of what I would do if I became a ghost arose the other day — certainly not because I plan on leaving this mortal coil anytime soon, but it just came up as ridiculous hypothetical questions often do.

I had been reading about the recent measles outbreak in New York City and the outcry against the anti-vaxxers, a growing number of parents who don’t vaccinate their children against childhood diseases like measles and mumps because they think the vaccines can possibly cause autism. There’s a mumps outbreak at my old alma mater, and I’ve heard that whooping cough, which killed my grandpa’s sister more than a century ago, is also making a comeback.

I’m a live-and-let-live type. I may rail on about my silly pet peeves like that Subway Fritos sandwich, flip-flops on the train and some truly bad Hollywood movies, but, for the most part, I don’t give a lot of thought to the personal choices of others. If you want to ditch your self-respect, rub city filth all over your feet and waste two hours of your life, it doesn’t bother me.

I felt the same about the anti-vaxxers, until I realized it could affect me, too. After this high-dose chemo, I’m pretty susceptible to just about everything with my low white blood cell counts. The whole reason for this upcoming stem cell transplant is because the chemo really does a number on your bone marrow. I think of it as being broken down and then rebuilt, like Iron Man (speaking of bad movies, Iron Man 2, I’m looking at you) or Robocop.

After the transplant (presumably before I get superpowers), I’m told I’ll have the immune system of a newborn. I’ll have to stay away from crowds and children. I’ll have to get revaccinated again. (I’ve already been vaccinated once as a baby, then again as a 12-or 13-year-old after there was some recall.) I have to take anti-shingles medicine every day, twice a day, for a year and a half after the transplant.

But I’m a little alarmed that there’s this extra risk for things like measles, mumps and whooping cough out there. I understand where the anti-vaxxers are coming from; no parent would put their child at risk for a disorder we know so little about. But that choice is having more widespread affects than I think we anticipated. I realize the term “outbreak” is being used pretty liberally. And I have a lot of real things to face, versus hypotheticals.

Yet this could affect me, whereas people who believe gluten is toxic don’t. I want everyone to be happy, so if I personally think the solution is more research into autism so we can figure out the causes. We need some real science behind this, so people can make educated, informed and safe decisions. Easier said than done. I bet no one’s ever thought of this before!

Well wishes aside, after I read about the measles, I announced that if get a turn-of-the-last century disease and perish, I will haunt the crap out of anti-vaxxers. We’re talking Amityville Horror-style. I am going to be one pissed-off ghost. I would have trouble haunting Jenny McCarthy, because I really enjoyed that Singled Out show. I always preferred Lauren Conrad to Kristin Cavallari, but if I could haunt celebs, I’d prefer to haunt someone more exciting. My hypothetical ghost has already become shallow and sidetracked from its afterlife mission.

The thing is, I don’t think you can select where you’ll end up and who you’ll haunt.

I suppose this begs the question: Do I believe in ghosts? Absolutely. I’m not sure if I believe that people’s spirits stay behind and haunt the earth, but I love stories of unexplained phenomena. So this might totally discount my reasonable stance on vaccines. I get that. I’m no expert. I’m just some lady. And I would rather talk about ghosts any day. I love a good ghost story.

Years ago, I wrote an article about ghosts of Columbus, Ohio. I spoke to a few ghost experts and enthusiasts, but maybe my favorite part was speaking to people who had just happened to see a ghost. Talking to people who had just seen something they couldn’t explain made me a believer in something—if not ghosts, then something ghost-like.

Some of the ghosts seemed cognizant of the outside world; one guy saw the ghost actually wave at him in a mirror. Most of the ghosts that people saw seemed to be intently doing the same thing—and in most cases, it’s leading up to an important moment. I can’t say why one ghost always makes his way to the same movie theater seat or why one ghost is constantly running up the service stairs of a hotel.

In that story, I also wrote about author and cartoonist James Thurber, who wrote The Secret Life of Walter Mitty and documented his ghost experience in his story, The Night the Ghost Got In. One night, Thurber heard heavy footsteps around his dining room table, then the sound of someone running up the stairs. When he asked about it, he’d heard a few people had moved out because of the ghost, belonging to a man who had lived at the house. According to Thurber’s research, the man had received information that if he went home in the morning, he’d catch his wife and her lover. Supposedly, he did catch the pair, then ran around his kitchen in despair before running upstairs and shooting himself. From what I heard, the ghost continues to haunt resident authors from time-to-time.

Most ghosts seem stuck in a loop. I imagine you can’t choose the place you’d like to haunt, as you choose your favorite haunts in life. Otherwise, places like bars, restaurants and amusement parks would be packed with fun-loving ghosts. Ghosts don’t seem very mobile. Or fun-loving, for that matter.

And you probably can’t choose who you’d haunt either, which is a big bummer. And kind of a relief. Imagine if people you’d wronged in life could suddenly show up in phantom form and seek vengeance for a past wrong. I bet we’d treat one another a little differently.

I can’t think anyone who would haunt me, but I can think of at least six people I would enjoy scaring the crap out of, if given the opportunity. I don’t know that I’d want to haunt them long-term, though.

If I ever became a ghost, haunting my current place of residence would be most likely. I wonder if I’d spook the cats.

My boyfriend and I discussed what I would do if I returned as a ghost, and I realized I would continue to pester him about the things I do now. It’s in his best interest to keep me alive.

First of all, I would rattle around the unwashed dishes in the sink. When I do the dishes, I do all of them, but he always leaves some at the bottom. He never does them all, and it drives me crazy. Also, he leaves the silverware, so that we regularly run out of all spoons. I would use my ghostly powers to make a ruckus in the kitchen.

Then I would sweep all of the papers off the dining room table. When I met my boyfriend, his dining room table was full of stacks of papers and CDs, and I had a nice empty dining room table. Since he moved in with me, my table has never been clean. I used to clear it off, but I was told I was messing things up. It doesn’t matter whether we live in a small apartment or had a house with a room that served as an office, everything ends up on the table. I’ve given up. Sweeping everything off every night as a phantom would give me great satisfaction. I would almost live an unsatisfying afterlife as a ghost so I could finally do that.

Also, no matter where I haunted, I’d probably turn up the heat. I’m always cold and waging a heat battle. I’m not sure if ghosts get cold. They’re sometimes responsible for cold spots, so maybe it’s moot. Maybe I’d just mess with the thermostat to be a jerk.

So, I suppose after careful consideration, I’d prefer not to be a ghost. It’s not the same as being invisible and acting without consequence, which would be awesome. And my boyfriend has been so nice to me during my illness, he doesn’t deserve to be nagged about the spoons and the table. (I’m just saying, though, if I lingered on this earth, I might.)

In the meantime, I’ll keep in mind that the chances of being taken out by an old virus is very small. Probably smaller, in fact, than my chances of becoming a ghost.